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Comprehensive Care for Rare Blood Disorders conference
The Network of Rare Blood Disorder
Organizations, in collaboration with the Canadian Hemophilia Society, announce
the holding of a conference entitled Comprehensive Care for Rare Blood Disorders
in Toronto, February 3-5, 2006
The
conference was a great success. To read about the conference, please
visit the following
link. NRBDO
http://www.hemophilia.ca/nrbdo/en/home.php
“The Price of Pain”
The cost of prescriptions,
medical treatments and devices, surgeries,
worker's comp insurance, disability payments, physical therapy,
psychological therapy and such...Yes, you can add all those things up
and get a total cost...but that is not the price of pain. The price of
pain is more...
The price of pain is the loss of self-respect when you can no longer
complete personal grooming, cook meals or take care of your family the
way you want to...
The price of pain is the loss of rewarding employment when you cannot
perform the tasks to do the job you love...
The price of pain is the loss of quality of life when you can't go
hiking with your children or dancing with your spouse...
The price of pain is the loss of relationships with friends and family
when the pain and medication makes it impossible to even have a
conversation or attend important events...
The price of pain is no longer being independent when you cannot drive
or shop for groceries alone...
The price of pain is the depression and mental anguish the pain brings
with it...
The price of pain is the loss of sleep and the resulting problems
sleep deprivation causes...
The price of pain is the side effects of the medications taken in an
attempt to survive the day...
The price of pain is when you lose who you are in the pain. These
things and more are the price of pain. It is the living every minute
of every day around what your pain level is or when you can take the
next dose of medication, praying it will bring more pain relief than
the last dose. When happiness is 3-4 hours of pain-free sleep or a day
with only 75% of the usual pain...
The price of pain is paid by the person in pain as well as those who
love them...
The price of pain is watching someone you love suffer day after day,
night after night and you are helpless to ease their pain...
The price of pain is when your child asks "Can you play with me, if
you are feeling Ok?"
The price of pain is beyond money, the price of pain is beyond words,
the price of pain is all encompassing. The price of pain seems
endless...
The price of pain is there until the day that person is free of their
damaged body...
The price of pain is all these things and more. But the pain is not me
and I am not the pain...
The pain is part of my life, but the pain will not be my life. I will
fight, fight, and fight. And though the pain fills my life it will not
take my life. Each day I live, I fight and show the pain who I am.
Even though the pain may take much of my life it will not consume me.
I will not allow the price to be that high...
The price of pain is all this, but I am more...
Author unknown…
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